At just 17 years old, Marley Dacquel-Javate stands out in his community for his remarkable achievements, particularly in fundraising for multiple sclerosis (MS). Recognized as one of Winnipeg’s “Winnipeg 150 Medal Recipients,” Marley’s efforts stem from a personal commitment rather than a desire for accolades. His motivation is deeply rooted in his family experience; his mother, Marielle Dacquel-Javate, was diagnosed with MS when Marley was only five years old. The diagnosis marked a pivotal moment in their lives, as Marley transitioned from a carefree childhood to a role where he felt he needed to support his mother, who faced increasing challenges due to her condition.
Marielle, a single parent, recalls the overwhelming anxiety she felt after her diagnosis. The immediate concern was how she could balance her responsibilities as a mother with her health limitations. As her MS progressed and she started relying on mobility aids like a cane and scooter, her worries grew exponentially. Despite the challenges, Marielle was determined to provide for Marley, but she was acutely aware of the emotional toll the disease would take on both of them. Their close bond only deepened as they navigated the complexities of living with MS, with Marley often checking in on his mother and expressing concern for her well-being in the midst of her struggles.
Multiple sclerosis is a complex neurological condition, and MS Canada reports that approximately 12 Canadians are diagnosed with the disease every day. There is still no cure, which gives urgency to fundraising for research, as highlighted by Andrea McCulloch, MS Canada’s director of community engagement. McCulloch emphasizes the importance of funding research to better understand the disease. Following this sentiment, Marley has successfully raised $19,000 over the past two years, actively engaging in various community initiatives like bake sales, flag football tournaments, and MS Canada events to support research efforts.
Marley’s relentless pursuit of awareness and fundraising reflects his vision of making a considerable impact in the fight against MS. He recognizes that raising awareness is crucial in combating the disease and is eager to inspire others, especially his peers, to join in the cause. He believes that while volunteering and fundraising can initially seem daunting, they become more manageable and impactful as more people get involved. Marley’s enthusiasm for making a positive change in his community serves as a call-to-action for other students to not only give back but also realize the personal rewards that come with volunteering.
As his high school journey nears its end, Marley remains ambitious, aiming to raise an additional $10,000 before graduation, part of which will be through his role as a team captain for the MS Walk. His mother’s pride in his accomplishments is palpable; she describes her feelings as transcending mere pride, recognizing how Marley’s involvement has not only fueled his drive for change but has also profoundly impacted their family’s outlook. Marielle finds empowerment in connecting with others within the MS community and no longer dwells on the uncertainties that plagued her earlier.
In a heartfelt reflection on their journey, Marielle expresses a desire for others to be inspired rather than to feel pity for their situation. She elaborates on how their experiences have provided opportunities to teach resilience and empowerment to others facing similar challenges. Their shared story serves as a catalyst for fostering hope and connection within the MS community, embodying a mindset that transforms adversity into a foundation for positive change. Ultimately, the binding goal for both Marley and Marielle is to inspire a ripple effect of support and empowerment, contributing to a broader aim of uplifting others while continuing their fight against MS.
